Thursday, January 21, 2010

Getting to my feet.

   Standing on the edge of at least a 1/4 inch precipice of a rug that tied the room together I peered at the book lined shelves of an acquaintances library. I leaned a little too far forward, lost my balance and toppled into his shelves. I brought a few books down to the floor with me. At least I didn't follow Woo's example that night and pee on his on rug. That's been known to happen, but this Chinaman is not the issue!  Instead I quickly gathered and reshelved the books hoping nobody had noticed my fall. They hadn't, it would've been okay if they had. Everyone at the party that night knew I had just gotten out of the hospital and that this was my first foray back into a semblance of a social life.
   Twenty one months ago the doctors found a large mass growing in my bladder. Diagnosed as invasive stage 3 bladder cancer it meant the bladder had to go before I did. The surgery went fairly well, but the recovery did not. I ended up spending 3 months hospitalized for various complications. I lost 60 lbs in that time, a lot of it muscle. Also gone was my coordination and balance. So now I'm 18 months cancer free, physically I'm doing fine. I put the weight back on, started Tai Chi about a year ago to help with the balance and coordination issue. I do tend to fall into the gumption traps with my recovery. That's a head problem not a physical problem, or maybe it's a heart problem. I just don't have the heart (the gumption) to get back into the the working world of 9 to whatever. It doesn't bother me much to get up and drive Shari to work but the thought of driving myself to work to do some pointless piece of business leaves me cold. The world can get by without another power point presentation.
  I feel vaguely guilty about this. I count myself among the 10% unemployed. I go through the motions of job hunting I apply for two to three jobs each week, I send out some resumes and occasionally go to a job fair or an interview, but my heart's not in it. I suspect that prospective employers sense that and pass me by. Partly it's depression. I've gone from catheters to Depends to pads, - back to catheters, peeing through a tube then sitting to pee, now back to standing to man size diapers as nighttime apparel. It all pisses me right the hell off.
   I take that as a good sign. A sign that I am in fact coming back, feeling good and getting up to speed. Despite the self absorbed whining I'm doing here today, I'm better than I was a few months ago. Not as good as I will be but I'm getting to my feet. This time I hope they're watching.

This is the first thing I've posted about BC in a while. In my anger and shame I said some unkind things about some folks that surely didn't deserve my ire. Bladder cancer is the 4th most common form of cancer among men and 5th most among women in the US. It gets under-publicized, and underfunded. The Bladder Cancer Advisory Network - BCAN or CBCAN in Canada  are organizations devoted to spreading the word and getting information to those such as myself. I'd like like to thank them for all the hard work they have put into helping folks.

12 comments:

  1. Tag - Just today, for some reason, I googled katabatikos. I don't know why. Turns out, it's Greek for 'going downhill.' Katabatic winds carry high-density air. I'm sure you've probably covered this earlier in your blog, but I find it quite interesting. I wonder if you feel you have a wind at your back that propels you down slippery slopes. Certainly your humor propels some chuckles out of me and your other readers as we glide along with you.

    Staring in the face of a grave diagnosis is not an easy thing. Everyone here is watching as you get back on your feet, maybe even Woo.

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  2. Good morning, Dude. I had a health upset that was dealt with at the holidays (this is a few years past) by filling me up with blood originally belonging to other human beings. I could live with that. After the holidays, the going-for-tests festival began. This-opsy and that-scopy, as I slowly lost my bearings. When I was referred to LV Blood & Cancer Specialists, I thought, "Wow, a practice that focuses on both hematology and oncology." It took me a little minute to realize they deal with cancers of the blood. I wasn't being checked out for a blood disorder, I was being checked out for cancer. And I slipped a little more. When my doctor asked "Are you OK?" during the bone marrow biopsy, I said, "As well as can be expected." But she was asking the question of my trusty companion who was sliding down the wall watching the proceedings.

    I don't yet have the disease, which is a quite deadly one. I'm "on watch". However, the prospect of it has so shifted me, I am not the same as I once was and I will never be the same as I once was. Once my problem had a name and a game plan, one would think the dust would have settled and I'd have moved on. Uh-uh. I was about 1 stoplight away from crazier than batshit and I acted out in a way that nearly ruined nearly every aspect of my life. That's how I expressed "pisses me right the hell off".

    So you see, dear Tag, my dear knave friend, I think you are doing just marvelously well. There aren't any rules of etiquette for such assaults on our beings. No one else can tell us what to feel, how to feel, how to act, what to do. We just have to find our own personal way, and sometimes that isn't pretty. Tough shit to anyone who doesn't like the way you do it. Let's roll!

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  3. Kass, I'm not familiar with the Salt Lake City Area but I would guess you are familiar with that warm wind coming down the mountains that is called variously a foehn wind, an Alberta clipper or a Santa Ana depending on your location. They are all katabatic winds, going downhill as you discovered. In the northern hemisphere if you keep your back to the wind low pressure will be on your left and high pressure on the right. I always like knowing where the pressure comes from.
    Dear, dear dear Leslie, Consider yourself hugged from the east coast. I so much empathize with crazier than batshit and acting out, but as another dude in another movie once said "the root's working".

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  4. <3 right back at you, my friend. We all just do the best we can. We (humans) aren't prepared or told how to cope with some things. We just have to forge our own path.

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  5. tag, i've had cancer. i got lucky-caught early, relatively easily remedied, now constant vigilance. my then husband was so much less than helpful, it was mind-boggling. i found my way, with excellent friends, through the maze of decisions, emotions, and all the rest of the dance. to say it changed me minimizes the ramifications.
    it's amazing what we can do when we have to. and we have to.
    take 'er easy. watch the breath.

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  6. Who is Woo or is it Wu? This may be the quintessential question.
    "It was while jogging along the beach just east of the Paradise Cove pier that Artie Wu the fat 37 year old pretender to the Imperial throne tripped over a dead pelican, fell, and met the man with six greyhounds." Ross Thomas - Chinaman's Chance. Though the preferred nomenclature is Asian-American.

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  7. omg-ross thomas! i love his books! thanks for jogging my memory of books read, authors loved.

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  8. Artie Wu, that fucking Durant, Otherguy Overby along with Travis McGee are still some of my favorite novels to reread. Ross Thomas and John D McDonald. I'm glad you are familiar with Ross Thomas. Makes me smile.

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  9. Tag,
    Once again I'm touched with what you posted. I'm so glad I found your blog.
    Battling with a life threatening decease isn't easy, it tests us to our limits and remind us on how precious life is (which we usually take it for granted).
    I'm not surprise you are not missing the office and that you are not crazy about finding a job right now.
    It is fantastic to hear you are coming back and that today you are doing great but not greater than tomorrow. That’s the spirit!
    I found your other blog – I’ll keep reading it.


    loveNlight
    Gabi

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  10. maybe another smile-i've also read all of mcdonald's stuff.

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  11. I composed my most recent post with you on my mind the whole time.

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